September Newsletter

Charlotte County Ostomy Support Group
A 501 (C) (3) nonprofit organization, (tax deductible donations)

President: Jerry Downs……. 629-7568…………
Vice Pres…Bonnie Coker 423-8542 Directors
Janice Creutzman;941-639-2370
Secretary: Lovelle Meester….637-8167 David Sandora…..941.828-1076
Treasurer: Karen Chalfant:…623-0088 Joan Huber………941.575-8708

Newsletter: Gloria Patmore & Karen Chalfant
Programs & Education: Jerry Downs, Penny Maki, RNET,CWS, 205-2620 Gloria Patmore, 627-9077
Nancy Frank RN,BSN,CWOCN, 629-5118,
Marie Michel RN,CWCA, CHRN,OMS 626-2606
Visitation: Nancy Frank BSN,CWOCN
Library: Karen Chalfant
Products Bonnie Coker
Professional Advisors:
John P. Rioux, MD, F.A.C.S. Nancy Frank, RN,BSN,CWOCN;

Next Meeting:
Tuesday September 12: 2:00PM
Gables East 2nd floor alcove
South Port Square 23023 Westchester Blvd Port Charlotte
Program: “Rap” Session
Sharing with one another

Panera Bread $15 
Perkins $10
Beef O’Brady $20
2 subway sandwiches

September Newsletter for Charlotte County Ostomy Support Group
We look forward to another great season together, ready to help all new ostomates adjust to
living with their new “buddy”. I am writing this at the start of August and have not yet looking
to our neighboring businesses for donations for our chance drawings, but never fear, we will
have our drawings and our speakers, but most of all we need you! Input from our experienced
ostomates makes the adjustment for someone learning to live with it.

You need friends

The best known relief for mundane every day stress_ the flat tire, the sick cat, and the hundred
of other nits that pick at us- is nothing more complicated than someone to pal around with. The
basic human need for playmates- childhood or adult versions- serves us well it seems, in
helping us deal with day to day troubles.

We need emotional support from our friends in the stressful times of severe life situationswhen
some major life event has occurred, such as a death of a loved one or the loss of a job. In
times of ordinary life, troubles are relieved more by companionship- someone to go to a movie
with, for example. In those situations talking does not reduce stress as much as having a friend
to do something fun with you. In fact talking too much about small troubles can make them
worse. What we often need instead is distraction, something that gets our minds on something
else. A companion with shared interests is just the ticket.

Sneezing season


Colostomates who take anti Histamines during the sneezing season may find that these drugs
have a tendency to slow down the intestinal action and the irrigation process becomes slower.
Some report relief from the drug reaction by increasing their fluid intake on the day they
irrigate or from eating a laxative type food.
Love cures people. Both the ones who give it, and the ones who receive it.


 When to contact a WOCN Nurse
By Julie Powell, WOCN

Living with an ostomy can be a bit challenging sometimes. One of the most important things to
remember is that everyone’s ostomy is different. The following are reasons to contact a WOCN
for advice:

  1. A change in the size or appearance of the stoma.
  2. Skin problems around the stoma, including a rash, open sores, redness or weeping.
  3. On gong leaking of the pouching system.
  4. Weight gain or loss that may cause difficulty with the pouching system.
  5. A cut in the stoma
  6. Difficulty in getting an appliance to adhere to the skin around the stoma.
  7. General questions regarding stoma care and management. Issues may revolve around, bathing, activity, odor, diet and travel.
  8. Contemplating a change in pouching system.

These are all problems we can often address throughout the year with our programs,
but a one on one meeting with your WOCN is invaluable!

The Doctor/Patient Partnership
By Carol Larsen

When support groups of people who have survived a serious illness gather, it’s a good
bet that eventually their doctors become the topic of conversation. Because of the life
and death issues involved strong feelings emerge. Good experiences tend to breed hero
worship, while unpleasant encounters can leave everyone bitter. The impressions that
make these relationships work the best are based mostly on the gifts of a good
diagnostician and the ability of doctors to connect with their patients while dispensing
care. Stories about insensitive physicians top the list.

Doctor with female patient

We have our good stories too, praising the doctors who have what is known as a good
bedside manner. The realities of modern medicine make it hard to establish much of a
personal exchange. Time allotted for most appointments is short, and patients are
usually scheduled in tightly. Instant judgments abound. Some hasty comment, look of
boredom, or impatience on the part of the physician can influence the effectiveness of
care more than it should. But rudeness works both ways. Patients need to do their part
to pay attention and make the best use of this time.

How to get the best care possible.

  1. Be selective.
  2. If you have insurance call the number on your card and find out which doctor is in your network.
  3. Call another doctor you admire and ask for a referral.
  4. Find a doctor who is convenient for you and works in a hospital you would prefer.
  5. Be Efficient
  6. Be on time
  7. Bring in a list of your medications, and insurance information
  8. Deliver your information concisely. If you are in pain grade the pain 1-10 . Be specific about your concerns.
  9. Don’t expect your doctor to listen to unrelated facts.
  10. Don’t underwhelm your doctor with a diagnosis you pulled off the internet or from well meaning friends.
  11. Listen carefully.
  12. Take notes. Bring a list of questions you had beforehand.
  13. Write down treatments or words you don’t understand.
  14. Be reasonable and respectful. Understand that both of you will not always be at your best, especially when an illness is hard to treat.
  15. It is primary to your care to be able to accept honesty and not to persuade your doctor to give you glib promises.
  16. Repeat the doctor’s message out loud so that you truly understand what is being said

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2 Responses

  1. gloria patmore says:

    You have done a great job with our newsletter. Thank you!

  2. Elaine E Botticelli says:

    I’m new and am looking forward to your next meeting. I have an ileostomy from a surgeons mistake and have lots of questions. I’ve had it 2 years now and now they say it may be permanent. And I just moved to Punta Gorda.

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